Month: February 2015

early intervention

On a sunny day in October in my 28th year, I walked, sweating, into the early intervention building with a giant tub of Jack’s therapy toys under one arm, and two-year-old Jack screaming and flailing in my other arm. I called to four-year-old Henry to stay close to me in the parking lot. We were doing this because our life…

A Green Ribbon

I sort of feel like I am daily spinning a giant emotions wheel not unlike the one with dollar amounts on The Price is Right. A hard pull and I watch it cycle past, waiting to see on which wedge the flapping tab will land. Optimism. Frustration. Breathless survival. Irritation. Detached calm. Fury. Satisfaction. So many options. Today it landed…

Fridays at Costco are NOT Tuesdays with Morrie

I sent off an article today. That hasn’t happened in quite some time, mainly because I haven’t had the heart to write something “newsy.” I can’t make myself care about making writing feel neutral for the sake of professionalism. Nope. Don’t care. So I wrote about lessons I’ve learned from autism and I made it funny. At least it’s funny…

Exceptional Care

Dutch and I met with Jacky’s support coordinator yesterday to make some changes to his care plan. I learned that because of the nature of his disabilities and the intensity of his behaviors, Jack requires what is coded for billing purposes as exceptional care. It was the most validating thing I’ve heard in ages. No kidding he needs exceptional care!…

When Driving Was Simple

Do you ever look back at a previous time in your life and wonder why you didn’t rejoice every day about how great things were then as compared to now? I keep doing this. I will find myself thinking how just a few months ago, we could drive in the car without a ten-year-old funnel cloud whirling destruction on everyone.…

Solstice Writing Retreat

Back when I was in graduate school, I met Terry Tempest Williams, which thrilled me as I knew her from her books to be a most brilliant writer. I told her I was a graduate student, studying writing. She put down her pen and the book she was signing, looked directly at me and said solemnly, “It takes great courage…

Mountain Goat

I’ve been dreaming about mountains. Literal peaks of really tall, rock-strewn mountain ranges. I’m either driving on roads cut as switchbacks into the sheer sides of a mountain, or hiking on steep dirt trails. Twice, I’ve dreamed that I can’t find my way back to the road to get home, and my children will be getting off the bus soon…

Scapegoats and Witches

I have this internal discussion running in my head. Sometimes I forget to keep it quiet and “talking to myself” becomes “dramatic monologue.” I hesitate to even bring up the topic that is swirling in my mind because it’s surrounded by controversy, and I totally have zero interest in engaging in the heated discussion about Autism and What Causes It.…

Normal Things

Charlie wailed before getting on the bus this morning, “Baby gets to stay home all day with you!” He was anxious about his class trip to the bowling alley. Bowling is scary when it’s the unknown. I think Charlie’s dream day would be French toast and sausage for breakfast, nowhere to be, unlimited Xbox, GoGurts for lunch, all the neighborhood…

Special Ed

Parent Teacher Conferences were this week for my two boys with IEP’s, so of course I wrote down a smattering of the esoteric conversations only a special needs parent experiences with teachers. “I’m pretty sure Jack thinks I’m trying to starve him.” (Miss N) “Charlie has figured out that the first two kids in the recess line have to hold…